We also got to witness Jonah's nightly dressing change first hand, and as Patrice explained on her blog, A LOT goes into that.

Jonah behaved very well for his dressing change and seemed very content once it was over and he got his bottle. It was quite an education for Rob and me; and Matt, Patrice, and Debbie (Matt's Mom) were happy to answer our questions. On a future blog posting, I want to break down all of the dressings that they use and the financial part it, which is quite expensive. We enjoyed spending time with Matt, Patrice, and Jonah but of course our time was too short. We are planning another visit for the summer in which maybe we can take Seth.
Please continue to pray for this family. Send them a card or an email if you get a chance. Kind, thoughtful words are very uplifting to them and they are so grateful for the thoughts and prayers.
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